Thank you to everyone!

I'm in awe really of all the information and support you are giving me. Truly such a blessing, I believe!

The diagnosis of SS was after a lip biopsy...and the doctor that read my lip biopsy was one of the 'toughest doctors' at the University of Chicago to give a positive diagnosis for Sjogren's....at least that's what my Neuro told me. He said my Sjogren's diagnosis, in his mind, is 100%, not to mention the other terrible symptoms of constipation, dry mouth, and dry eyes that I've had for years.

The lesions are indeed what confuses me, and with all that we were doing when I saw my doctor, I am really surprised I didn't ask him what else could cause the lesions. Usually I'm very good at grilling my doctor on everything. Must have been the pain issue's and the begining of my bladder stuff that scared me so much.

Okay, so to understand what to do here, I guess I need to start one med at a time. Should it be the LDN since that seems to help pain? My Dr said the Cell Cept will take two months just to kick in. Ugh. Never ending it seems.

Also, I did see an excellent doctor on my Chiari, and he said NO to surgery for it....until I get the other symptoms I'm having under control. It's funny, well sort of anyway....I had seen two other surgeon's for the Chiari and both wanted to operate immediatly. I'd rather go with someone that is conservative in that area because once you have that painful surgery, there is no going back.

What do you all think of dietary changes? Do those make a big difference?

Thank you so much for any more information....you are all so wonderful.