I love your tag line---I was on Betaseron and then on Rebif but stopped when they switch my dx to myesthenia gravis (MG), when I was put on IVIG, until I crashed and gave up on neurologists.

I still take mestinon (symptomatic tx for MG) b/c it seems to help my swallowing and truncal stability. As things were not getting worse, I dropped many of the meds 'd been on (Neuronton, baclofen) and avoided prednisone like the plague (that is the likely cause of my downward depresive spiral)

I don't know what to think or who to trust b/c it seems every Dr says something different

I'm trying to get an appoint with a local neurologist, although I know nothing about him---we'll see what happens

Thanks again for "listening"