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Old 03-12-2012, 02:24 PM
eeyore2's Avatar
eeyore2 eeyore2 is offline
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Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
eeyore2 eeyore2 is offline
Junior Member
eeyore2's Avatar
 
Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
Default "normal" people don't tolerate mestinon?

That is very interesting--I'd not hard that before

I'm still on the diagnostic fence (MS or MG or residual cervical cord compression), but the 1 medicine I can't do without is Mestinon---I have problem swallowing thin liquids and mestinon seems to help

I just have intermittent penetration and likely chronic aspiration (evidenced by my frequent left sided lung infections) and taking the mestinon (60 mg every 4-6 hrs) seems to help

I've decided if it a placebo effect, I'm good with that b/c I don't get side effects (although things get loose if I bump it to 90mg)


I think neurologist's have to much fun putting people into boxes (diagnostic categories) and should focus more on actually helping people

Whatever the "answer" to you problems, just remember you are not alone
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