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Old 03-12-2012, 09:55 PM
CJ123 CJ123 is offline
New Member
 
Join Date: Mar 2012
Posts: 1
10 yr Member
CJ123 CJ123 is offline
New Member
 
Join Date: Mar 2012
Posts: 1
10 yr Member
Default Newly ATN diagnosed but unable to confirm

First, I would like to that those taking the time to read and possibly provide insight.
My story...
June/July 2011 - I would mild toothaches that would last a few hours in my lower right jaw. Dentist found nothing.
Late August 2011 - woke in the middle of the night with severe lower right jaw pain. Convinced it was an abcess tooth I went to the specialist. Nothing could be found
Sept 2011 - all hell broke loose pain wise. Felt like someone was ripping my teeth out. Only think that could me keep me from screaming/crying in pain was ice cold water. I constantly drank wate while waiting in the ER. Dilaudid was given.

Based on what I have read I consider my lucky that my physician diagnosed me early on with Atypical TN and put me on Tegratol. I will go weeks fine and then all hell breaks loose again. The latest attack latest 11 days and 5 trips to the ER.

Occassionally, I will feel the pain start but not flare up to an all out attack. I dont have triggers. Just a tingling sensation at times as well.

I am now going to a neurosurgeon but my MRI scan did not show anything that would warrant the MVD. He says I need to wait until I a unable to continue my daily life and then he may try the balloon compression.

I just am dreading what is to come pain wise. I guess in a way I was hoping that the MRI would have warranted something to be done to end the pain.

Has anyone experienced this type of pain with TN? I just find it weird that I dont get shocks or momentary lapses of pain. Rather, I get persistent stabbing, throbbing pain...

Thanks,
CJ
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