New Member
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Join Date: Mar 2012
Posts: 2
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New Member
Join Date: Mar 2012
Posts: 2
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Quote:
Originally Posted by Sah-PCA
I had an aneurysm in January 2011. I believe Im having onset, partial seizure. I stare, laugh, cry, shake, get heavy, loose time, and the newest thing, i'm having difficulty breathing at times. It started about 6 months ago, six months after crainiotomy. I have a clip in my head to stop the bleeding. I had an eeg, but no concrete confirmations from a medical professional that, I am indeed experiencing seizures. I feel like im going crazy. I see little lights, tongue gets numb, sometimes i feel jerky, like one big spasm. Im on an emotional rollercoaster. I've gained weight. I get ringing in ears, but the worse of all these is the heaviness. It feels like someone is sitting on me. My colleagues say, I stare off in a daze, not to mention I get confused, have trouble focusing and completing simple task. I get extremely sleepy in the midday, no matter how much sleep I had the nite before. My heart races and is audible in my left ear. I've written all this down and discussed with my dr and neurologist.....still nothing. I took lyrica for a short period, it helped, was told it was for itchy scalp from surgery and not given 2 me because of seizures etc. I also took metoprolol for about 2 weeks, it seemed to amplify my symptoms, was told it wouldnt cause any of the symptoms ive been having, so i stopped taking that also. Can anyone relate, help, share. My rope is getting short. Ive been all over the internet looking for help, answers or someone just to share all of this with, someone that can relate to me and not think im being extreme. Heck, I almost died, wouldnt you be extreme 2?
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I'm so sorry to hear what you are going through. I've heard that a deficiency in Manganese can cause seizures. Metoprolol did not work for me either. I had chest pains all the time and my pulse would get low. I'm on Neurontin which for my nerve pain from Chemo, however it also helps seizures and acts as a mood stabilizer and I can't tell you how much it helps the nerve pain. It' not addictive like the other drugs I have taken. I may cause a little water retention but not bad. Please hang in there. I almost died of stage iv breast cancer 5 years ago and today I'm cancer free. It doesn't go without symtoms from the therapies, but I'm alive and I prefer that than the alternative. All the best you. Grab whatever you have left of that rope and hang on! I really mean that! Somewhere there is an answer. Don't stop until you find it! Charlyn
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