Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Wow, that's a stunning diagnosis. What seems so weird to me is that given your family history, they didn't diagnose you with CMS back when you tested negative for the antibodies (you tested negative at first and then positive later, right?). I'm glad someone's finally taking your family history seriously, though in your place, I wouldn't know what to think.
How old were you when you first started getting symptoms? I keep reading that the onset of CMS is in childhood, or in rare cases not until age 20 or 30. I guess your case is going to educate some doctors.
I'm sorry you have something else to deal with now, as if it weren't hard enough before.
Abby
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