I can't even thank you enough for sharing. Like the beginning of when I was first diagnosed my mind is getting the best of me right now and I feel crazy. I'll look into your suggestion for sure. As far as docs, I can't see my regular doc because if she knew how bad I was she would refuse to let me go back to work in 3 weeks, I had to beg her last time. I see the neurosurgeon next week but the only I can get from them is physical therapy which I'll take. I had stellate blocks in my neck that didn't take and there isn't much help where I live. I do move as I lost the use of my hand the first time by guarding it and experienced the hell getting it to move again when I discovered I HAD to use it. Desynthesying, no way. I worked up to wearing a bra and can tolerate firm pressure but forget purposely trying to brush against my skin. I noticed I have a sunburn appearance too but played it off and it's interesting to me that you mentioned the same. I know I'm in a grieving process right now. Pain pills help but I'm not supposed to work on them so I've been trying not to take them, then I do and beat myself up for it. Vicious cycle. I believe I'm fighting myself in hopes the old me will return and to afraid to give in to the idea this is going to stick around. I function with the original rsd sight and learned ways to help it, but I have no idea how I'm going to fake it at work this time. Then all the worries, what if s of if I lose my benefits, job? That scares the hell out me. I'm so sad. I was a backpacker, I ran, I took care of people for a living and love it and now? Fighting not to become a burden to my husband. Fighting not to lose all of me. Thank you again I'll check the link.