Quote:
Originally Posted by Debbie D
Welcome to our little corner of the world...
DH and I went to a workshop for MS patients and caregivers. The moderator brought up the point that the caregiver/spouse secretly wishes, as we do on some days, that this "was over with". when DH shook his head in agreement, it clued me in on how heavy a burden he is carrying along with me on this crummy journey.
I would also suggest that if you can get a caregiver in occasionally to take some of the burden off of him it would be beneficial...maybe counseling also-for the both of you.
This disease takes a lot out of our quality of life...punch back with every tool that society gives you!!
Keep us up to date...we are a nosey group of people who love to comiserate, support, put our two cents in, and hug...  |
Of course, as I am new here, I now realize I should have given more info... As to this issue, the biggest problem with having a chronic disease like PPMS - IMO - is that insurance companies have lots of written rules and regulations that all boil down to "no" when it comes to home health aide services. If you break your leg, ins cos will happily allow/pay for a HHA for the 6 weeks you need it (until you recover.) But I will never recover, I will only get worse and that makes me a "chronic case." I have to fight over-and-over to get the lovely, helpful HHA I have now - who comes in twice a week for a total of 4 measley hours -but that is it. Neither the county nor the state gov't is of any help (believe me, I have called, written and even had a social worker check); so, the only way for us to have more help is to pay out-of-pocket. I don't know what the prices are like where other people live, but here it is a minimum of $25 an hour. We simply cannot afford it.
