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Member
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Join Date: Jul 2009
Location: West Virginia
Posts: 375
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Member
Join Date: Jul 2009
Location: West Virginia
Posts: 375
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Breaker, first I want to tell you how sorry I am that you are officially in the "I have RSD and have crappy doctors club!" and second, welcome...you have found the best forum that there is for RSD/CRPS/They are changing this stupid disorder's name, once again! There are so many compassionate wonderful people here who will give you the encouragement that you need and the answers that you seek, when no doctor will give you the time of day. Most of us have been through the same thing and if someone on here has not, then I say, they are the lucky ones.
I am into my 4th year and my neuro told me at first, to NEVER go on the internet and look up anything about RSD, because it would cause suggestive thinking. I waited a year and because I felt like I was going crazy, I searched and found this site and it basically saved my life, my marriage and my entire family life. RSD can suck the life out of you and if you don't have a good support system, you can get so far down that you'll feel as if, you'll never get back up again.
Do NOT let any doctor run you...you research the bejesus out of RSD and when they come at you with stupid answers, throw them a curve ball by telling him what you know about RSD and do not leave out any symptoms that you may be developing. Everyone is different when it comes to this disorder. My doctor has always told me that a kowledgeable patient is a good patient.
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