Hi n2n and welcome to the group! Sounds like you're in the limbo group as yet, but don't let that bother you. Stick around and join in the fun. Personally, I've been diagnosed for 22 years and looking back, am sure it was around for 14 before that. I've never had an LP, my diagnosis was made from a history of symptoms and an MRI. The lesions that showed up sealed the deal.

The past five years have been spent in a wheelchair -- actually a powerchair -- but I still live alone with my little dog. It's getting tougher everyday and pain is a big issue for me, but I try taking it one day at a time.

No advice for you, but wanted to say hello and good luck in your journey with this disease.