abby - thank you so very much.. it really means so much to me that you did this and have thought about me. I think the neuros when I was inpatient in the neuroscience center thought I was seriously crazy when I almost smiled when they told me they thought it might be MS- I'm sure most people are quite devestated to hear that news.. but I am still hoping for something "manageable/livable" and having a definitive diagnosis would just help calm my nerves and constantly running mind- I can't stop thinking what the heck is this!?
Another person at my infusion center (ivig every 3 weeks) has a diagnosis of CIDP, says she has slurred speech and droopy eyelids as do I when she is fatigued or IVIG wears off!!! I'm praying the neuropthamolgist might be able to add a piece to the puzzle- and hopefully it will point to a managable illness. thank you again so much! Yall are great!