Martina,

Similar to you, I have fusion of C5-C6-C7 with adjacent disc compression. The EMG test cannot diagnose TOS, only rule out other causes. My wife is a physician. In medical school, she learned only about the extra cervical rib in regards to vascular TOS...nothing else. With all due respect, your neurosurgeon doesn't know what he's talking about in regards to TOS past what was required to pass the board exam. My neurosurgeon and neurologist went above and beyond (EMG and 3T MRI of full spine and brain) to make sure my remaining symptoms were not coming from my spine, then advised me to see a vascular surgeon with TOS experience. Definitely seek out a vascular surgeon with experience with TOS.

You are definitely heavily medicated in regards to pain management. Seems like a fibromyalgia treatment. I'm surprised you are not on Neurontin, since Lyrica is not covered by your insurer. May be worth a question to your doc.

The miracle drug for me has been Toradol. Toradol is a powerful NSAID similar to high-dose Motrin. A 3-5 day course of Toradol returns me to normalcy. It used to clear things up for me as long as 2 months. Now everything comes back a day or two after I stop the Toradol which is a reason I believe it is time for me to explore surgical options (you cannot take Toradol on an extended basis). Can't hurt to ask your doc about it.

My advice would be continue with your TOS specialist and find a few other vascular TOS guys to get additional opinions. You really don't need the neurosurgeon anymore if you are fully fused and your films and EMG are normal. It may be worth consulting another pain management doc for a second opinion on your meds as well.