Hello,

I only recently learned about SPML surgery within in the last week and have been busy trying to gather as much information as possible. I have tried to do scientific literature searches on the procedure but there are very few published studies.

My son was born at 26 weeks and will be 3 yrs. in late April. He was diagnosed with spastic diplegia as well as being profoundly deaf (cochlear implants now). He has had 2 rounds of botox (bilateral hamstrings & gastrocs), which does help, but he is still unable to stand independently with his AFOs, walk with a walker,.... I have a couple of questions and was hoping some parents/health care providers might be able to provide some guidance:

1. Are Dr. Nuzzo & Yngve the only options for the procedure?
2. Can anyone provide feedback on Dr. Yngve (although Dr. Nuzzo is closer)
3. Does anyone in Canada do the procedure (at any of the children's hospitals or elsewhere)?
4. What is the approx. cost for a Canadian to get the surgery in the US?
5. Is there any funding for Canadians?
6. What are the long-term outcomes from the surgery (i.e. ability to walk, walking with/without AFOs and other assistive devices, future reversal of the procedure, going back to tendon releases/botox,...).

Any answers/info would be greatly appreciated.