I can only think of this as it relates to myself, that is, being on the receiving end of the caregiving. The biggest thing I needed and still need is my husband's empathy. Before I would have said I need him to understand; to really get it. But now I know that you can't get it unless you've lived it.
But anyone can demonstrate empathy, an attempt to get it or to imaging how it feels. I thing it's fine to admit that as a caregiver you may not really know but it means the world to us to know that you believe our un-seeable symptoms and you are doing your best to understand.
Thanks to our spouses and caregivers. You are precious to us and I know that you are also having your own emotions and pressures to deal with on top of every thing.
X-soccer gal