Thank you both for your concern. Ginnie, I do not take pain meds as I am either intolerant or allergic to all that I have tried. Sometimes the side effects aren't worth the relief although I will say the meds did not give me that either. The last neurologist I saw told me I have progressed to central pain syndrome(I think that was what he called it) and pain meds do not help that.
BMW, I did not get any relief from my surgeries, in fact each time things got a little worse, that is why at this time I do not think I would have another surgery. PNS was never mentioned to me only the motor cortex and the deep brain stimulation. All my sugeries were done by the same team and although I have had no relief I still would thank them with all my heart for trying to help me.
Again thank you for your concern, if there is anything I can do to help just ask.
Have a great day,
Marlene