< All of his issues have come to light since a surgery about a year and half ago, well come in majorly. There has always been loss(we have only been together for 7 years), but nothing like what has sprialed since the surgery, I initally thought it was just post anesthia syndrome which I asked the surgeon, who just blew me off(and yes I did ask if there was any hypoxia during surgery and have since gotten the surgical report and nothing out of the ordinary), however symptoms have hung out WAY to long for it to be that anymore ;o(. >

The surgeon is blowing you off to avoid liability. I am very sensitive to anesthesia. It can be extremely rough on a brain, especially one that is compromised by injury. Look up chemo brain.

If he has a need for further surgery, see if he can have spinal anesthesia. general will just make him worse.

<Trying to figure out what is going on with him actually has stemed from him having a extremely low testosterone level. The Dr. I work for after speaking with her about symptoms etc went woah there is more to this then just the testosterone and we have been running ever since>

Check out [URL="https://www.womensinternational.com/request_referral.html"]https://www.womensinternational.com/request_referral.html

You may be able to find a hormone specialist who is not a run of the mill endocrinologist. Hormones for someone with his history needs to be more specific. Too many use a shotgun approach.

< He has been to a neuro, who I feel blew him off and my husband also used some of the "tools" he was learning in speech pt(for memory and cognitive loss).>

Most neuros are worthless. If they can not image it on a CT, MRI or EEG, it does not exist.

<As far as calling them CHI's instead of concusion's is due to that is what my doc has called them(I am a M.A. in a PCP's office-yes he is a pt, I know I know HIPPA LOL he is ok with it ;o)) >

Yes, laugh about HIPPA. It is a joke anyway. Did you know that a collection agency has access to all of the medical records for patients who do not pay their bills? Anybody with a business relationship to the patient's health care has access to the medical records.

<I believe the reasoning is we don't have great documentation on them, other then reports from family etc
. Since I haven't been around that long some is very hazy, other then there have been a hell of a lot of them for someone his age-hell for any age. He will only be 40 in May. The reasoning for a lot of them was a daredevil when young and no one tried to control it even after several concussion's/CHI's with LOC. >

It would be worthwhile to put together a list of any suspected head injuries, including any suspected that did not include a LOC.

<Also he was a combat medic in the first Gulf war-on the ground with a Marine Battalion. >

Give him a hug for me and say Thanks for serving. My daughter is a Combat Medic and served in OIF in Kirkuk. She married a Marine who fought in Falluja.

So, he has Multiple Concussion/Impact Syndrome with PTSD on top. That is a horrible mix.

<He has not undergone nuero-psych testing as of yet, the neuro he saw wanted us to finish the work-up on his failing pituitary gland before anything else. Which the endocrinologist he is seeing is basically saying it is failing due to the number of head trauma's he has had and probably not "fixable".>

The NPA is still worthwhile. The SSDI application will want the information. NPA's can take a while to get done. I doubt the endocrinologist will be able to change much even with good hormone therapies.

<We have been discussing the SSDI, but need someone to be able to say this is permanent and disabiling, still working on that. See the endocrine for a follow-up next week, hopefully we can get it there. I am no longer comfortable with him going back to work.>

Start a log of the problems he has had trying to work. Mistakes made, arguments with others, things lost.

<His greatest struggles right now is remembering things(questions, conversations,peoples names, or significance of people's names), one track thinking or obsessing on one thought process and not being able to move to another and the loss of words. >

Classic PCS/Multiple Impact Syndrome. The difference being PCS can be trqansitory. MIS tends to be the start of a long downward progression.

<I was told by the pt to give the words up instead of trying to "make" him remember them, that it would just frustrate him and me. At least we are at the point where he no longer gets angry when I tell him a word or finish a sentence/question when he can not place it or remember it.>

Did the pt tell you to help him with words? Yuck, that sounds counter-productive. I doubt you have been together long enough to read his mind as well as he would need. LOL

I will look into the Carondelet support groups we are very familiar with carondelet in general and any help at this point would be great!!! I have no support system here in Tucson. My family is in So Cal and his family is not really a help at all, they even now since it has been explained just think he is being stupid, or a pain. They have no idea and no want to have an idea of what we both deal with daily ;(

tell friends and family to watch the YouTube video series (6 segments) called "You Look Great" by John Byler at http://www.youtube.com/watch?v=x9Xso...ature=youtu.be It takes about an hour total.

If anybody wants more info, they can download the TBI Survival Guide at www.tbiguide.com

<So I think I answered most of your questions, as soon as I can I will PM with an email, would love to chat with your wife!!!!!! Anyone that has dealt with any of the things we are would be great!!!>

You can send a message to a moderator and they can forward your email to me. I can then give it to my wife. Brain Injury Support Group was great tonight. She is a great support for the wives of TBI survivors.

We had a speaker tonight who suffered a severe injury from a fall at top speed while training for the Olympic in women's cycling in 1984. Her first doctor called her parents asking if he could harvest her organs. They found her a different doctor. She spent 3 months in a coma and 3 years learning to talk and walk. She has traveled the world winning Olympic medals as a ParaOlympian. She does both cycling and running.

She has a slogan:

"It's not how to survive the storm, but how you dance in the rain."