[QUOTE=Nanc;863329]
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Originally Posted by ballerina; Kelly, You still have time to put the brakes on the SCS trial to do some homework. There is no relationship between a successful SCS trial and a successful outcome if you have CRPS.
ballerina - this is not an accurate statement. There are many of us on here with RSD/CRPS and successful trials (and permanent implants).
Yes, everyone should do their homework before having ANY major procedure done. Everyone is different, with what they have tried and what they have/have not responded to. And no, not every dr is only focused on his bottom line. I happen to have a VERY compassionate and caring dr and my SCS reps are great!! My dr is focused on me when he is treating me, and what is best for me...not him! I went in with my eyes wide open and do not regret my choice!
I think it is great that you provide information for individuals to use as they are weighing their options and doing their homework, but please be honest and realistic about it. What works for me may not work for you and what works for you may not work for everyone else.
Nanc
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There is no one happier than I am that your spinal cord stimulator is providing you with much needed relief. I so hope that it continues to work forever.
The odds, however are just not on your side. The truth is that there is not one shred of scientific evidence to support the use of SCS for CRPS for long term relief and physicians routinely do not share that information. This has nothing to do with "what does not work for one may work for another."
By the way, how many years have you had your Spinal Cord Stimulator to treat CRPS pain?