[QUOTE=CRPSjames;863368]
Quote:
Originally Posted by Nanc
There is no one happier than I am that your spinal cord stimulator is providing you with much needed relief. I so hope that it continues to work forever.
The odds, however are just not on your side. The truth is that there is not one shred of scientific evidence to support the use of SCS for CRPS for long term relief and physicians routinely do not share that information. This has nothing to do with "what does not work for one may work for another."
By the way, how many years have you had your Spinal Cord Stimulator to treat CRPS pain?
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Thanks James. I have only had them since June 29, 2011, I have two - thoracic and cervical. Who knows, maybe I will contribute to the scientific evidence supporting that they do work for CRPS long term...we shall see. I think it does have a lot to do with "what does not work for one may work for another" because we are ALL different in how we each respond to treatments, etc. I am that one in a million person that bizarre things happen to and things don't work on. I do not respond to most treatments, but am to this and I am allergic to everything. Back in 1992, I was diagnosed with RSD in my face. The UVA Pain Clinic said I was the first case they had ever seen or heard of with it there. They successfully treated me. They wanted my dentist to submit my case to the medical journals. I had an injury in 2009 that caused it to spread.
My stimulators have allowed me to regain the use of my hands and left arm. I could not raise my arm before the scs. For this success so far, I can continue working and typing on this keyboard. After they were implanted, the spread has stopped, my color is great, my pain is reduced greatly and I am working! I do not know how long it will last, no one does, but I'd like to think that it will last a very long time!
You need to stop beating yourself up and forgive yourself. You told your story and didn't force anyone into doing anything.