Quote:
Originally Posted by betsykk
My daughter was in the study and got no markable results from the placebo to the drug. It was very disheartening.
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Sorry to hear that your daughter didn't get any results. I know it doesn't work for everyone.
I do know for those of you who might be interested in trying it that it has been helping others. NIH can't say for sure because the study is not complete and because it is double blind, they are not sure who is taking the actual drug. But they told me when I went there that during one of the phases of the study for the majority of the patients they have had so far (probably when they took the active drug), there was a notable reduction in pain/alloydynia. I know that if I forget to take it, or if I am waiting for the next batch to be shipped, I notice a difference. Hope this helps !