Junior Member
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Join Date: Mar 2011
Location: The South
Posts: 27
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Junior Member
Join Date: Mar 2011
Location: The South
Posts: 27
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Thanks
Thanks for bringing this back up to the first page. My memory has gotten so bad, I actually did not remember posting this here. Here's a little update...
The diarrhea got so bad my neuro told me to just stop the generic mestinon. I never got to try the brand with the exception of the time released. On top of everything going on the hospital pharmacy substitued the brand of IVIG I was getting and when I got the November dose I had some side effects.
The neuro skipped December and in January I got 3 days of Privigen IVIG and had a severe reaction. I first had vertigo on the last day of IVIG and then the diarrhea started as well as weakness. I was drinking plenty of water, gatorade, etc over the week but on Saturday night I passed out at 1:30 and did not wake up until my husband got up at 6:30.
We waited until Monday morning to go to the ER (should have gone sooner) and I had extremely low blood pressure, dehydration, and was confused. I was treated 1 day in the ER and admitted to the hospital on Tuesday and released on Wednesday.
My neuro has ordered the "Brand Necessary" Gammagard Liquid for my infusions and I have taken this with no problems in February. I have another one scheduled for next week. I am going to check into getting the "brand Mestinon" tablets as I understand this is what will give me my strength back.
Has anyone else here on IVIG infusions had any severe reactions to the other brands?
Gabriella
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