Hey, Neofate. I reread your previous post to get some more info. So it looks like you have a vitamin D deficiency and low thyroid, which may mean Graves. I hope you have been supplementing with Vitamin D, Magnesium and Vit. D. Not too much Mag though since that can make MG worse, if you have it.

Do you live near a university or research center? Can anyone refer you on to a neurologist? A neuromuscular specialist is better but any neuro can run an AChR antibody panel! There's also the MuSK antibody test but that can be expensive. You mentioned previously that money is an issue. I'm sorry about that. Many of us are in a similar situation.

How's your diet? How high is your cholesterol? Is it slightly high or really high? Often simply a change in diet can lower a slightly high level. Were you given a statin drug to take? Those can make MG worse.

http://www.mayoclinic.com/health/red...tient-redyeast

I have found that many neurologists don't like patients telling them what they "think" is wrong with their health. Yes, many neuros I've seen are rather arrogant. I think it's enough to say that you feel weak and give examples of that.

Are you comfortable with your primary doctor? Do you have one? They could run the AChR Antibody panel and send it to somewhere like Mayo. Then at least you'd have some info. A primary doctor could also do a neuro exam and tell you their findings. They rate muscles in an exam. For example, 2/5 muscle strength is fairly bad while 5/5 is best.

Instead of using "dispersed" you may want to say "generalized" muscle weakness. That's how neuros refer to it. Though just say you're weak and where. Heaven forbid we sound too intelligent!

Without acetylcholine, peristalsis - how food goes through the GI tract - does not happen well. You need muscles to move food through the body.

You could also see a neuro-ophthalmologist. They can assess your vision and tell you if you have "fatigable" weakness of your eye muscles causing your vision issues.

Are you short of breath? You could ask your primary doctor about getting breathing tests done. A pulmonologist is really the best one for that.

It really sounds like you need a few doctors to help you. If you are that bad off, you should probably begin with a neurologist. I'm surprised you haven't seen one yet! You can't mess with MG, if that's what you have. If you get so weak that you can't move well at all, breathe well or can't swallow, you need to be in an ER; diagnosed or not.

Have they checked your vitamin B12 level? Your primary doctor can do that too. Often, a regular tablet won't do. Some people need sublingual methylcobalamin, a B12 which goes right to work in the bloodstream. I take it daily. Since money is an issue, I get mine at www.iherb.com where they have reduced prices.

Anything else we can help with? I think your symptoms sound like MG but it's hard to tell over the Internet. MG is all about fatigable weakness and it sounds like you do indeed get worse the more you do. It's the hallmark of MG.

Just bite the bullet and get a neuro. You deserve to know what's been making you feel so awful for six years!

Annie