Originally Posted by catra121

Oh Beverly...I am SO sorry to hear what you are going through. Sounds like it has been just an awful time for you these past few years and (as is often the case) I am appalled by the lack of care you received early on that might have prevented most of this especially since the doctors diagnosed you and knew what they were dealing with. How awful. Many people with RSD have been made worse by the spinal chord stimulators and I don't think I would ever risk that...but then on the other hand I do know what it is like for the pain to be so awful and to be so desperate for relief that you will believe just about anything the doctors say without doing your own research on it to find out if it's really the best option for you.

One of the members on here, CRPSjames, was made worse by the SCS and he has found amazing relief from tDCS treatment. The equipment only costs about $300 and you can do the treatments at home. I just started this a month ago and I too have seen some improvement already, as have others. There is a thread on here about it and I highly recommend reading through it. It's many many pages long but I know when I read it, it filled me with great hope that here was something that was not invasive, has little to no side effects, can be done at home so no travel to and from doctor's offices, and it is incredibly affordable and people who found no success with anything else are seeing great results. This may be a good option for you after everything you have been through.

Take care. This is an excellent forum to ask questions, seek out advice, or even just to vent when you need to. We all understand what you are going through as we live with this monster on a daily basis to one degree or another. I am so very sorry for all that you have had to suffer through.