Quote:
Originally Posted by ger715
I have PN , pretty much where you have as well. The causes are pretty hard to determine . Not sure the treatment differs whatever the cause.
Usually only the pain can be treated. I am on a high dose of Oxycontin, as well as percocet for breaktru pain. Many of the support formulas contain vitamins/supplement that can be purchase individually. I order most of my vitamins/supplements from Iherb.com.
This is what I take: (and feel it is of some benefit; in some cases can help in regenerating the nerves)
2mg's MethyCobalamin (empty stomach), 150mg's Best Stabilized R-Lipoic Acid (empty stomach) and 150 mg's 2 - 3x's a day Best Benfotiamine.
I have been taking these for about 6 months. My energy levels have increased and feel the burning in feet and ankles has lessened a bit. I feel if there is a chance of regenerating the nerves; it is worth a try. (did have an unsuccessful trial stimulator about a year 1/2 ago). This disease is usually progressive; but have heard of some going into remission..
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Thanks Gerry for responding so quickly and informatively to my query. Is Benfotamine a form of B-12 and what is Methylcobalam? Have you heard of others beeing affected in the genitals?- it's like an ever tightening vise. It's getting unbearable... I'll check out Herbs.com John