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Old 03-29-2012, 01:21 PM
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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I just want to say: try to take heart. There are so many unknowns at this point, but there is good reason to hope! Some myasthenics go into remission. Many of those who don't, still get their symptoms under control. Getting a diagnosis is huge.

You will find ways to still do things with your son, even if they're not the same things (I have seven kids myself, including three little ones who I'm homeschooling). Your son will be able to adapt to the new "normal" when it all settles down--when you have more answers and more experience with day-to-day living with MG. I'm not saying that this disease doesn't continue to throw surprises at us, but you won't always be in such a state of emotional turmoil as you are now. Your reaction is warranted and normal, so let it wash over you--but know that it will get better!

Abby
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"Thanks for this!" says:
Icrad1 (03-29-2012)