I'm sorry that you still don't have answers. It's a hard place to be.

Don't make any drug changes without talking to your doctor! Not all MGers react to all the drugs that are relatively contraindicated for MG. The ones that we cannot take are Ketek and now Quinolones. Some would debate the Quinolones, however, the FDA did recently put a new warning on them for MGers.

http://www.fda.gov/Safety/MedWatch/S.../ucm247115.htm

At some point, you may have to take a trip to see a specialist. You can't keep going on this way. If you need help finding someone you can trust, ask people here for suggestions and tell them how far you'd be willing to travel.

As far as the breathing, have you seen a pulmonologist and had thorough breathing tests and/or arterial blood gases? If not, I highly recommend you do that right away.

I'm going to say something that may upset you. Quit blaming the doctors and try to work with them. If you go in with an attitude, you're just going to get an attitude right back. If you go in vulnerable, honest and needing their help, you may get a different reaction. Now, I don't know you or how things have gone. Pretty terribly from what you describe. But you need help and you are at the point of it being life-threatening from what you've said.

I hope you'll find someone to help you soon.

Annie