Originally Posted by ginnie

I know that you are seemingly out of options, and are considering this SCS pump. I do follow these threads how ever on this issue. From an "outside" viewpoint, I think I would have to do more research on it. The problem it seems to be is that patients for the most part are not allowed to program their own devices, and therefor find what really works to help. It is 50 quesitons from the programmers. Since it is YOUR body experiencing the pain, it should be your right to help program the device. You are the one that should be in control of your own body. To be dependant on anothers idea of what works wouldn't be good enough for me. I have some kind of thing traveling up my leg. I am not sure what is happening to me yet. If I were in those shoes, I think I would have to go to the ends of the earth, to gain the knowledge and skill it would take to program my own device. I am strickly an outsider Kelly. The trial is a good idea, it is just the idea I don't like about not having enough control yourself. It is bad enough your pain is out of control. Would you talk to your doctor about this? I am not againsts it, really I am not, I know you suffer. It is just the way the whole industry is that I object too. tDCS is another thing I heard of. I may have gotten the letters wrong.
This is a device you can monitor yourself from my understanding so far. I am just in the beginning states of research right now. I do wish you all the best, and I am so sorry this happened to you, to put you in this situation. What ever you choose to do, my best wishes and prayers are with you. ginnie