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Old 03-30-2012, 09:06 PM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Quote:
Originally Posted by CRPSjames View Post
It is great that you are seeking other treatments, but not good that, for whatever reason, your doctor has nothing else to offer you.

Regarding SCS trial there is absolutely no relationship between a "Successful" trial and a successful outcome if you have CRPS. If there were there would not be so many people like me.

It is very upsetting to me that your doctor could suggest that the trial is not invasive. He is not being truthful with you.
James - I want to again add my comments here. Kelly has gone through various treatment options, I do not know what is left other than the SCS...or the tDCS that you guys push. Her dr recommending the SCS at this point is not necessarily a bad thing, not every dr pushes them out of greed. Some actually do recommend them because they truly think it is a good option and treatment plan for their patient.

As I stated previously in response to one of ballerina's posts here...this statement about no relationship between a successful trial and a successful outcome if you have CRPS is not true! I am one of many RSD/CRPS sufferers who have had a successful trial and permanent implant. Mine has stopped spreading since my implant, pain is reduced greatly and color is better. I don't know about you, but I call that a success.

I did not think the trial was that invasive, yes it was painful and restricting. The permanent was definitely invasive. The dr is probably going by the definition of invasive...Definition of invasive (of surgery) - involving making a relatively large incision in the body to gain access to the target of the surgery, as opposed to making a small incision or gaining access endoscopically through a natural orifice

I do not know about having a SCS and how it works with pregnancy, but you guys need to stop speaking for everyone and just speak for yourself. Don't make statements that are untrue, it is not fair to those seeking honest support and insight.

Nanc
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"Thanks for this!" says:
ginnie (03-31-2012)