Glenn:

All I know is that we saw countless doctors over the past 18 years and in every single appointment, I made a point to tell the doctor: "By the way, we'd like to bring to your attention that Alan's mom had Guillian Barre Syndrome and absolutely every single one of them pooh poohed me.

Every single one of them.

Why didn't the first neuro we went to see, at Coney Island Hospital, (I'll never forget him), why didn't he say to me "oh, his mom had GBS, let's rule out CIDP, just to make sure, let's give Alan a spinal tap".

If only, Alan might have not had to have 18 years of what he had.

I wonder, did they have IVIG all those years ago???

mel

P.S.I just went to one of the links and it was about Sensory Guillian Barre. Seems to fit Alan to a tee. Kind of like a variant of GBS.
jeez.