Quote:
Originally Posted by Rrae
James, let me ask you this. What do you propose is the diagnosis of Nanc, myself and many others on this forum? If your statement above rings true, then either A) we have all been misdiagnosed, B) the outcomes of what we share is fabricated, C) you've done a world-wide research and have IN FACT found that every single CRPS with implants have failed, or D) you simply have made a false statement.
Posting inaccurate information on a forum does not fly.
Here's just one documented study that proves there ARE positive results for CRPS recipients:
http://www.anesthesia-analgesia.org/...109/2/592.full
Like I said prior, these case studies are not necessarily anything to base all truth on. These clinical trials are usually exclusive to a small demographic region and only select patients are used.
I've also seen some of the case studies in which indicate low rates of success for CRPS. It goes both ways.
All we are politely asking is that you refrain from making statements such as these. They simpy are NOT true.
Wouldn't it sound rather ridiculous if some of us were to come here insisting that ALL SCS implants for CRPS pts are sure to be successful? I'm sure that would pretty much step on alot of toes.
You've made your point of how much you are against SCS and that is fair, as you yourself had a very unfortunate outcome and you have every right to feel this way. But don't come here to a forum full of people actively using SCS's and insisting there are no successes for the very diagnosis that alot of us have been living with for years.
I am not trying to be argumentive, nor do I undermine the fact that yes there ARE alot of failed outcomes out there. There is a very diverse group of testimonies here, including the positive and negative.
You've given very good input to the original poster of this thread and your valid concern about pregnancy. At some point you are going to have to trust that she is a 30 yr old woman who might know more than you give her credit for and that this ultimately is between her and her doctor. She's heard your viewpoint and can take that into consideration at her next visit with Dr.
My only regret is that her thread has been hijacked with headbutting and disagreement. When I see a statement with false info made once and twice, possibly scaring off somebody coming here for support, I WILL speak up.
Rae |
I don't know how this thread as been hijacked. Discussions presenting the entire picture can only be helpful to anyone who is really doing their homework.
Research on SCS is indeed very interesting. Anyone conducting a review of research on SCS and CRPS should carefully look at the funding sources, as well as the connections of the researchers to the companies that manufacture SCS. Much of the research and case studies that whitewash some of the realities of SCS and CRPS is paid for by the manufacturers.
The fact that the manufacturers themselves can supply no scientific evidence that SCS are safe and effective for CRPS says even more than the opinions of the top CRPS expert in the U.S.
I so much hope and pray that your pain continues to be relieved by your stimulator for ever and wish you only the best!