Hi everyone
I am going to just step in here and emphasize again that what makes our Community work is that we have members representing many different viewpoints on treatments and protocols, and they are all welcome to share their knowledge or experience here.
We are a patient support community, which means simply that no "experts" rule here

It does a disservice to others when anyone suggests that there is only *one* effective treatment, as experience shows that is simply not factual. What works for one, or some, does not necessarily do so for others. It would be wrong to not have open discourse and then let people decide for themselves what route they want to take. It is also upsetting to people for whom a treatment *is* working to be told that it is not.
So please be respectful of the choices others have made, and allow them to freely share their experiences with others.

thanks