Quote:
Originally Posted by Rrae
Ballerina, I'm not going to sit here splitting hairs over case studies. That is a waste of time. You and I both know these things go both ways and case studies are simply that - STUDIES. The REAL proof is in the pudding. Neither one of you have answered my question regarding how do you explain to a forum full of SCSers who have CRPS and several are getting good pain relief from these units. Do you not see that these exist? Flip side, yes there are those who have NOT had good experiences.
I'm not sure what 'doctorate' you are referring to, but most every single one of us has done extensive research and by some of the comments you have been making (such as 'there is no such thing as a successful trial and implant of these devices in CRPS pts') implies that you believe you are the top expert in what you are saying.
Why are you trying so hard to prove us wrong? All we are repeatedly asking is that you show some respect for those of us who battle this horrid condition and happen to be getting decent pain contol via the SCS.
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Hi Rae,
Nowhere did I claim to be an expert on CRPS or SCS. I do, however, have expertise in the evaluation of research methodology.
You sited a study supporting a particular position. Some may find it very helpful to know how to spot and evaluate studies that use good or bad research methods, which have a direct bearing on the validity of the conclusion drawn by the authors.
Regarding your quote of my comment please forgive me but I do not recall saying what you quoted. Could you help me out by letting me know when I posted that comment?
I am not trying to prove you wrong, rather I present the other side.
At one point a doctor was trying to convince me that the best long-term solution for me was a SCS. I believe I posted about this last fall. Since my appointment with Dr. Schwartzman was not until summer of 2012 I did not want to undergo a treatment, prior to seeing him for an evaluation, that I might later regret. I contacted his office and inquired if there would be anything that would be contraindicated in my having a SCS implanted. I was cautioned against it for the following reasons:
1) Risk of new source of neuropathic pain at the incision sites.
2) Risk from surgical revisions, which are common.
3) High failure rate necessitating removal thus posing more risks of CRPS spread.
3) Risk of full body spread.
This information was echoed by Hooshmand’ who cautions that in 70% of cases relief for CRPS patients is short lived.
I do not seek to scare or disrespect anyone. I only seek to share information that may aid in decision-making when considering this procedure, information that is not routinely made available to patients.
I am truly sorry if anyone believes I am showing disrespect by sharing the opinions of some of the top CRPS physicians.
I fervently hope that everyone finding relief from pain no matter the treatment finds long lasting relief.
Take care and here is hoping better days are ahead for all of us!