Quote:
Originally Posted by Grammie 2 3
I have been wondering what the pml odds are after 4 years. I found out that between 48-60 infusions it is 1/800. I was happy to find this out 
I will set up an appt for a private jcv test since I have been + and - . I will be very happy to find out that in 2010 I had a false positive-here's hoping !!
I now get a yearly MRI as my neuro wants to protect the kidneys from the dye. He believes to get an MRI if sx warrant it.
I really like my neuro I had one in AZ I liked (she still wasn't as well informed as I wanted) but, this is the first one in CO and really good!
Linda |
I noticed that they have the risk profile in the new insert with the vial of Tysabri and you can also get the revised booklet from your infusion center that has the new stats in it.
When was the last time you did the JCV test? My neuro is planning on doing it yearly now, I think, since we can still be exposed without knowing. He still gives me the standard warning-any changes that last more than 24 hours, etc. Even worse, he gives it to the old man too, because he knows I think I am Superwoman...
Let us know how it turns out!