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Old 04-02-2012, 07:56 AM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Quote:
Originally Posted by ballerina View Post
Kelly,

You still have time to put the brakes on the SCS trial to do some homework. There is no relationship between a successful SCS trial and a successful outcome if you have CRPS.
Ballerina - here is the quote Rae is referring to. I commented on this after you posted it. You and James posted this same comment. I, as did Rae, commented to you both that it is a FALSE statement.

And your other quote, as copied from another one of your posts here: "Having a doctorate makes me about as much of an expert on CRPS as the next patient but evaluating research methodology is right up my ally." It looks to me that you are claiming to be an expert period.

All we have asked is that you guys stop making these types of statements and you guys continue. You guys are oblivious to what others are stating, you discount everything we say and it is unfair to those seeking support and insight.

Yes, both sides need to be presented, but do it in a fair way. Share your experiences, but not these so called facts that try to prove us SCSers wrong. We are living examples that it is working effectively. I think that my having RSD/CRPS for 20 years gives me the right to post my experiences about it as the next person. I am passionate about my experiences too, but I do not cram them down peoples throats as the only way to survive this!

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"Thanks for this!" says:
ginnie (04-02-2012), Mark56 (04-02-2012)