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Old 04-02-2012, 03:10 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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thank yall so much for yalls reply!!! I am feeling better as far as the generalized muscle weakness goes.. it's strange how it waxes and wanes.. we had been out of town last weekend and not slept much and pushed ourselves too much I think..

I am taking it as easy as I can with two kids (a 2 year old and now 1 year old).. and a full time job and taking care of a house/cooking etc!!! I REALLY try to rest more.. but with me being the bread winner and mom, it's not easy!

As far as the guilliane barre thing, that is defintely what the all think it may have been ... a bit of a slower onset though- I think it took about 6-8 weeks to hit my whole entire body. However, my reflexes weren't really dulled down (some said they were, others said they were brisk, others say normal - I have always had brisk reflexes my entire life however). My LP had upper limit of normal protein, and the 2nd LP had elevated, however I had meningitis then from the IVIG.. so that can mess up the results. They have diagnosed me with CIDP, however it is atypical, and they as well as myself are still keeping our minds open to other diagnoses

I have weakness in every single muscle.. but my proximal muscles are worse, especially my hip extensors (this is GREATLY improved by the IVIG when I don't get meningitis)! I have days where every muscle is so weak, it is hard to even go to the bathroom- my core muscles are so weak.. my face droops, and when my IVIG wears off my right eyelid droops a lot, slurred speech and swallowing issues.. and of course double vision too! Sooo who knows!
It does look like I am going to get to go see the neuro opthamologist this week though, so maybe they can give me some insight! I had no idea how rare neuro opthamologists were- there are not many at all!!!
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