Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Hi, and welcome. I just wanted to say that you should ask your doctor if the twitchiness means you're taking too much Mestinon. It takes a little finesse to figure out the right dose and frequency. Too much Mestinon will make you weaker. If you are taking a little more than your body needs, you might find that a smaller dose works even better. But don't make any changes without talking to your doctor.
I also want to second what Annie said about getting off the Mestinon before your SFEMG. Since you're seronegative (they didn't find the antibodies) it's harder to get a diagnosis, so you want the SFEMG to be as accurate as possible. Like Annie says, too, make sure you're warm. If the room is chilly, they can use a heating pad to warm the muscle they're testing.
Don't be too discouraged by what you read here. This board has a higher proportion of hard cases than the general pool of MG patients does.
Abby
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