Junior Member
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Join Date: Feb 2012
Posts: 8
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Junior Member
Join Date: Feb 2012
Posts: 8
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New here - looking for information about thymectomy/median sternotomy
Hello guys,
First of all I am sorry as I write here and I do not have MG. I am 25 years old, and I have mutliple disabling/severe conditions.
Recently, a thymic mass was discovered and surgery is recoemmended due to the unknwon nature of the mass. They cannot tell by means if radiological findings if it is a thymoma, thymic hyperplasia or another mediastinal tumor.
Given some of my new issues (extremeley painful neuropathy) a paraneoplastic syndrome could be going on which could improve after tumor removal.
Anyway, I am going to have this mass with my thymus removed via a median sternotomy.
I dont find much information about thymectomy outside the MG world, thats why I came here.
So here are my questions and I would be very gratfeul if I could get some answers.
1. how long does thymectomy via sternotomy usually last? I was told something about 1-2 hours - is this true?
2. most important: if you felt improvement of your MG symptoms after surgery - how long did it take for you to notice first improvements?
And how much have you been improving after surgery overall?
3. was there any problems with your GI system/intestines? as I have a severe intestinal dysmotility disease this question is quite important as well.
Thanks so much.
Sarah
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