Originally Posted by pelztier86

Hello guys,

First of all I am sorry as I write here and I do not have MG. I am 25 years old, and I have mutliple disabling/severe conditions.
Recently, a thymic mass was discovered and surgery is recoemmended due to the unknwon nature of the mass. They cannot tell by means if radiological findings if it is a thymoma, thymic hyperplasia or another mediastinal tumor.
Given some of my new issues (extremeley painful neuropathy) a paraneoplastic syndrome could be going on which could improve after tumor removal.
Anyway, I am going to have this mass with my thymus removed via a median sternotomy.

I dont find much information about thymectomy outside the MG world, thats why I came here.

So here are my questions and I would be very gratfeul if I could get some answers.

1. how long does thymectomy via sternotomy usually last? I was told something about 1-2 hours - is this true?

2. most important: if you felt improvement of your MG symptoms after surgery - how long did it take for you to notice first improvements?
And how much have you been improving after surgery overall?

3. was there any problems with your GI system/intestines? as I have a severe intestinal dysmotility disease this question is quite important as well.

Thanks so much.

Sarah