Welcome to the NeuroTalk Support Groups, Meredith.

There's a current thread in this forum
http://neurotalk.psychcentral.com/forum2.html
General Health Conditions & Rare Disorders

edited to add the current thread. Someone just posted there today.
http://neurotalk.psychcentral.com/sh...otumor+cerebri
Losing Faith, My battle with pseudotumor cerebri

I did what ginnie suggested as well and notice there are quite a few older posts from people in different forums here regarding pseudotumor cerebri.

Also some older posts in Hydrocephalus Forum
http://neurotalk.psychcentral.com/forum14.html

There's also the Headache forum
http://neurotalk.psychcentral.com/forum32.html