Trisha - sorry you are going through this difficult time. To answer your first question, my PM dr is a spinal surgeon (I love him he is the one who implanted my two SCS) and now I have a new neurologist. I see my PCP regularly because of my vitamin deficiencies, so she keeps tabs on everything the others are doing (I have them send her notes too).

I have not developed asthma, but it seems like I have developed a lot of allergies since getting RSD.

I hit my foot before Christmas and it still hasn't healed. We really don't think it's RSD, but just an inflamed tendon. I was terrified that I would get RSD in my foot, but I tried to let that thought go. I can't worry about something I can't control.

I think it would be a good idea for you to see a therapist/counselor. I go talk to one every once in a while - like when I get overwhelmed with this RSD monster. My husband is great and very supportive, but sometimes I need to talk to someone else who can offer something else.

It sounds to me like you need to re-evaluate your dr selection. You need them to help you, not fabricate your chart for them to look better. You also need drs who will listen to you...after all, you are paying them!! They are hard to find, but they are out there.

Wishing you the best of luck with this.
Nanc