I am very sorry to hear all that you are going through. So many of us have been there, done that, when it comes to the doctors. It appears as though the group you have now may not be the right fit for what you need in your situation. I am say this because you don't really seem to be getting the feeling of support and compassion that you obviously need to see from them.

I am very happy to hear that you are getting relief from the blocks...not everyone does so that is at least good news. But I too would be worried about the doctor recording inaccurate information in your medical records. Because it seems like he is setting you up to (at least according to HIS records) be a successful case that he can claim he "cured" your RSD or whatever. THAT would make me very nervous. I don't know if you have any legal stuff going on with your case where his notes may need to be looked at by lawyers or submitted as any sort of evidence...but the inaccuracies could make it look in court like you are exaggerating your pain (that you got better but still say its awful) or that you are being dishonest in some way. Your doctor may think that he is "protecting" the other doctor by recording that your pain is less or that the blocks are working more/longer. I have to say...this would all make ME incredibly nervous. Don't know what his real motives are...but any way you slice it this is not right and it looks/feels shady.

Your PCP...well...it may just be that he does not feel qualified to handle treatment of your RSD or that he doesn't know much about it. Don't get me wrong...I would still want compassionate care from a doc that didn't know much about it (especially if I had been seeing him that long). However...it just may be a case of him not wanting to complicate things by getting involved or giving advice on something he is not qualified to treat. On the other hand...what I personally expect my PCP doc to do is to coordinate things if I am seeing multiple specialists and keep up to date on my care. I left my PCP of 27 years (he literally DELIVERED me and was my PCP my entire life) because he was so incompetent, uncompassionate, and tried to pawn off the coordination duties on specialists who certainly felt it was not THEIR job to serve that function. Hard decision for me and led to some family arguments...but I am with a wonderful PCP now who is actually handling all my RSD care at this point. I always FEEL better when I leave her office and that is such a relief after I spent so many months getting bounced around from one doc to the next with no answers and no hope at the end of it. She has literally saved my life so one should not underestimate how important it is to find the "right" doctor for you as an individual.

Now...as to your question...I think adding in a neurologist is fairly common to have in the mix when treating RSD. I had bad experiences with the ones I met but many people find them incredibly helpful. There are more components to RSD than just the pain and from what I have seen...many PM docs either don't know or don't care about these other things. And they can have some major effects on our lives.

And I think adding a therapist would be a wonderful idea. It sounds like with everything that you are going through (all the stress and worries) that a therapist might be able to help you cope with things better and give you the peace of mind that you need. Remember that stress can flare RSD so if you have a lot of it right now it could be making your pain worse. Some people are able to do these things on their own but many many people need the help of a therapist.

Take care of yourself and good luck in the search for a new team of doctors that can give you the help you need. I wouldn't stop seeing any of yours (except maybe the podiatrist since it seems like he is not offering you anything at the moment) until you find new ones because if the blocks are helping then for your own health you should continue them. But maybe bring a witness with you who can verify when you tell him how much relief you got from the blocks and for how long. If they could take notes at your appointment that would be great. I had family and friends do this for me for a while. And take notes yourself at the very least...especially if you are having issues with your memory and all that.

Good luck.