Originally Posted by supersickchik

I have been reading on this forum for a very long time (thank you for all the knowledge and guidance) after I was hit head on by a drunk driver back in Feb. 2011. I have been in constant pain for over a year and nobody could tell me what was wrong with me. The two regular docs and 2 neurologists all said they didn't know what was wrong because all my MRIs and NCS/EMG studies were coming back normal. After hours and hours of research I was able to diagnose myself with neurogenic TOS. I was given injections, PT, drugs, the works, with minimal to no results. I was ready to give up when I called some of the specialists on this forum. I went to a Dr. Aaron Filler solely for this MR Neurography. I finally got a diagnosis and learned why all my previous tests were coming back normal and why all other forms of treatment weren't working. First, a regular MRI can not take a picture of the peripheral nerves unless it is within centimeters of your spine. The neurography, in which Dr. Filler discovered, is able to take pictures of the peripheral nerves and because of this he was able to pin point my problem which is in the Scalene triangle and within my armpit. My scalene muscles were torn in the accident and the scar tissue is now compressing my nerves making my life very painful. The NCS/EMG were normal because they did it in my hand and forearm because my pinky and ring fingers don't really work right. This test should have been done in my brachial plexus and I was told it is quite a science to do correctly. Now Dr. Filler was very expensive and his office staff was very 'sales pitchy' which turned me off. Dr. Filler was very knowledgeable just would have preferred more eye contact and timeliness plus he is an out of network doctor. I needed a doc that was In Network and that is how I stumbled upon Dr. Justin Brown. I am scheduled to see Dr. Justin Brown April 10th. I am very optimistic because I have been through so much over the past year. I am anxious to get some resolution to this or at least some relief. I will come back with an update.