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Originally Posted by Littlebytes2
Hi Nanc,
I am not sure ...but he put me on Neurotrin , he didn't say he would when I go back to see him. Did you have the burning and sweating? Because I haven't and hopefully never will. I am on workers man Comp, and I have to see their Doctor on the 20th. I looked him up and he isn't a specialist in RSD. I don't care I just cant imagine anyone who would fake this disease.
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Hi Deb, I sweat pretty bad, and I also had the burning, stabbing pain. Like Catra stated, everyone is different in their symptoms. I do not have the discoloration that a lot of RSD folks do, but definitely have RSD! Getting diagnosed correctly for my hand in 2009 was difficult because I wasn't "text book" with all the symptoms. Because of that delay, it spread like crazy. I already had it in my face, diagnosed I 1991-1992. When I was first diagnosed they treated me aggressively with nerve blocks and meds, that put me into remission for 13 yrs. Because of the delay with my hand, the nerve blocks didn't work as well that go around. This is why I suggested that the dr administer more, and soon.
I could not tolerate neurontin, and most meds. I also can not stand heat or ice, hot or cold water, PT or a tens unit. My lifesaver is my two spinal cord stimulators. So, everyone is different. You definitely need a dr who knows something about RSD.
Good luck to you!
Nanc
