Quote:
Originally Posted by AnnieB3
There has been a lot of research
Yes, do get the doctor's notes. One problem is that a lot of docs don't think of CMS. It can clinically present the same way MG does. If it were my daughter, I'd ask the doctor for a referral to Mayo. The main CMS guy (who basically "discovered" CMS) is in MN but AZ docs should know about it too.
It's great that you have a nurse to talk to. I know how hard all of this is to face but you guys will get through it!
Annie
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Thanks Annie for all the info. You have been so helpful. What test do they do for cms. It's been a lot of info to diges everytime we go to the dr. Do they have pediatric dr's at the mayo. If they put her on mestitone will it hurt her if she has cms instead of mg.