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Originally Posted by alt1268
I have rsd of the right foot and they do lsb (lumbar sympathic nerve blocks) after the shot my thigh is usually numb and my foot is bright red. As your dr. talked about the next step. I am unsure as far as pregblin with rsd. I think it is a matter of different strokes for different folks. My next step is a stimulator trial and if that fails I am requesting ketamine.
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Just thought I'd post up an update on my toes. I found out about a transdermal PLO gel base that can be used with pain management drug delivery into the skin as opposed to orally. Its standard practice and widely available in the USA/CA, but not in the UK or EU.
I managed to track down a specialist compounding pharmacy in London, UK **that compounds in an imported PLO gel from Canada called Medisca VersaPro gel. I just received it last week (£45 for 100g) with 10% amitriptylene compounded into it and have been testing it out. So far results have been good. I put it on before walking and it seems to stop the erythema leading to the stinging pain. When I run it seems to come back, but I need to do more testing before anything is definitive.
For me transdermal drug delivery is so much more preferable to orally taking drugs with all the side effects as I just can't focus on my work and don't like feeling semi comatose.
The NHS is currently trying to fast track something very similar called AmiKet - which is essentially the same thing with 2% ketamine added to the mix.
Anyway just thought I'd share my info in case it can help others who have not heard or considered this type of drug treatment
