Hello everyone! My name is Celina and my 2 1/2 year old daughter was just diagnosed with Chiari Malformation (her neurologist called it "simple") and Syringomyelia. We literally just got her diagnoses within the last 6 weeks. We have tried to do our own research but now we have so many questions and feel like we have no support in terms of what is really going on with our child.

Any comments, feedback, et cetera is welcome.

Have a great night!