Hello,

My name is Mathew and my story is too long to write. I have been reading a great deal on this board for several months now and I really need some advice. I've had more work ups from more doctors than I know what to do with. I've tried about everything I can think of and many of the things here on the board. I really could use a sounding board from someone who knows a great deal about PN. I believe I have a SFN. I have normal EMG/NCV, normal MRI, normal blood work (Yes, every test they have) but still burning, tingling and pain moving up from my feet to my legs and now in my hands. I'm getting worse, I'm scared, in pain and trying my best to figure out what is going on. I have been steadily getting worse for 3 years now.

Mrs D. Do you consult on any of these issues? You seem to be far more knowledgeable than my doctors. Maybe there is something I'm missing. Maybe there is a vitamin I have not taken in the right doses. Anything. I refuse to give up but I am running out of ideas and I would really be grateful if you would let me contact you for some advice.

Sincerely,
Matt