Thread: Back in limbo
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Old 04-11-2012, 07:19 AM
knittenkitten knittenkitten is offline
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Join Date: May 2009
Location: Bath, NY
Posts: 144
15 yr Member
knittenkitten knittenkitten is offline
Member
 
Join Date: May 2009
Location: Bath, NY
Posts: 144
15 yr Member
Default Back in limbo

My MS history is a little unusual. The MRI and other tests I have had usually do not show anything. My symptoms are classic. So, the docs see me when I am not doing well, say I have MS and treat me. When I get better and stay better for a long time they decide I do not have MS and stop my meds. Then, I get sick again. By this time I am so annoyed at my old neuro that I go to a new one and start the cycle all over again. I am now in the do not have MS leg of the cycle.

My PCP is willing to accept that I do not have MS but she knows I have something that the neuros are not finding. So, I am going to the Cleveland clinic tommorrow. I am excited to think I am finally getting an answer but scared I will not. I hope they do not say they do not know what I have either and leave me hanging. Please keep a good thought.
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