Its been a battle for us, and each day brings a new or strange symptom. We are being schedule this week for an appointment with a Neuro Surgeon at Motts Childrens Hospital, part os University of Michigan. I do not feel I can talk with her doctors here anymore. Because of her age, and where we live (rural) no on here has any experience with pediatric spine disorders. Basically, I am stuck until we can get her in at Motts. Thas why I posted, as I just need some level of understanding. I have been using google and other resources, its so exhausting.
I really appreciate everyones responses....