I'm glad to see you are sticking around. I was worried you had disappeared never to be heard from again. Your experience and opinion is valued.

This syndrome is frustrating simply because it is a syndrome and not a clearly definable disease. This means that none of our cases are exactly alike and neither is there a blanket standard of treatment for it. Be careful what you refer to as misinformation (true misinformation should be corrected). Don't take it personally if someone's experience or opinion is different than yours. Doctors are humans who make mistakes sometimes, they have good and bad days just like we do. All that matters is your quality of care and your relationship with your doctor, not anyone else.

We are all here to support each other as well as compile information to help ourselves and one another (and future visitors). My hope is that in part, we contribute to future better treatments for TOS in general.