Very sorry that you are going through this Apple...and at such a young age. I have had my fair share of doctors and people at work (and a lawyer) who treat me like I am exaggerating or lying about how much pain I am in. Bottom line...those are not good doctors in my opinion and you just have to keep looking until you find the right one (which I hope you have now that you have a diagnosis). And the other people...well...they just don't matter to me is what it has come down to.

I've been pretty lucky that my family and friends have never made me feel the way those others have and they have been 100% supportive throughout. BUT...I would say that despite how compassionate and supportive they are...they really don't "get" how bad the pain is and exactly what I stuggle with each and every day. How hard it is to make myself get up in the morning and to do the things that I need to do...to keep fighting. But I don't think it's their fault because I don't know that anyone who hasn't been through this and HAS RSD can REALLY fully understand what it is like (and I wouldn't wish it on my worst enemy let alone family and friends). Since family and friends are supportive, what I try to do in frustrating situations where I feel they are just not "getting" it, is educate them. They are always willing to listen and to try to understand. Not only is it good to help them understand but I personally find it sort of therapudic too.

Now that you have the diagnosis are they working on an aggressive treatment plan? Do you have any questions? This is a really wonderful site and I am glad that you found us because I know how helpful everyone has been on here for me. Take care...I hope they are able to do something for you.